Meet Our 2023 Kid HEROES!
These amazing young people inspire us and we know they’ll inspire you too!

Jack & Hunter
In 2010, Jack and Hunter were diagnosed with Morquio syndrome, or MPS 4A, an extremely rare genetic condition that affects a child's bones, organs, spine, and physical abilities. This diagnosis 13 years ago is where their journey with the Children's Hospital at Dartmouth Hitchcock Medical Center (CHaD) began.
Jack and Hunter's parents, Alison and Matt, said that CHaD has been the "backbone" of their medical care, which includes home infusions and ENT treatment. They hope to not only raise awareness about Morquio syndrome, but also want to give gratitude to the caregivers and medical personnel at CHaD who have worked alongside them since their sons were diagnosed. Jack and Hunter are TWO of the 2023 Kid HEROES.

Arianna O.
At the tender age of three, Arianna was diagnosed with epilepsy, a disorder that causes recurring, unprovoked seizures. Despite several diagnoses that have had an impact on her daily life, Arianna has managed to push through with a positive attitude. She has built a bond with her doctors at Dartmouth Health Children's, and they have been by her side every step of the way.
Arianna said that she wants to be a CHaD Ambassador because she wants to contribute to the place that helped her through her journey. "I enjoy meeting fellow CHaD Kids," she said. "I want to help raise money for the hospital that helps me."
Arianna O. is a 2023 Kid HERO.

Lucy & Sally
The day she was born, Lucy was transported to Dartmouth Health Children's for apnea and seizures. Lucy's mom said that as soon as they arrived at CHaD, they knew they could exhale a sigh of relief because Lucy would be in "good hands." After two months and many visits to the intensive care nursery (ICN), Lucy was diagnosed with KCNT1, a rare genetic form of epilepsy.
Now, Lucy has a team of specialists on her side dedicated to her care, something that her family feels very grateful for. But it is not only a team of medical professionals who have been by her side, Lucy's sister Sally has also been her biggest cheerleader rooting for her along the way. Sally hates when Lucy has seizures, but thinks she's the best sister ever. She misses her every time she has an appointment and isn't home in the evening, but wanted to say "THANK YOU" to doctors and nurses for taking such good care of her sister. "We feel so lucky to have a world class hospital in the woods of New Hampshire," her mom said. "CHaD has support and resources to help the whole family navigate a very challenging diagnosis."
Lucy and her sister Sally are TWO of the 2023 CHaD HEROES.

Cooper
Only 24 hours after he was born, Cooper's routine newborn cardiac screen was showing as abnormal. He was immediately rushed to Dartmouth Health Children’s and diagnosed with a congenital heart defect deemed incompatible with life. After having life-saving open heart surgery at Boston Children’s Hospital, Cooper has received his follow-up care at Dartmouth Health Children's, which included a sedated ECHO that detected a narrowed pulmonary vein requiring a balloon catheterization. At only a few days old, Cooper was a fighter.
Cooper's mom, Lindsey, is not only grateful for the care he has received, but she also hopes that one day Cooper himself will realize all the adversity he went through to get to where he is today. "We hope his story can be a source of hope and inspiration to others," she said. "We want Cooper to be proud of everything he has overcome to be the amazing, strong, smart, kind, and loving boy he is today."
Cooper is a 2023 Kid HERO.

Remy
Born at 28 weeks and weighing one pound and nine ounces, Remy came into the world a fighter. After a routine ultrasound only two weeks prior, doctors found a placental insufficiency that impacted her growth in utero and she spent four months in a neonatal intensive care unit (NICU) in Texas before her family moved to Lebanon, NH where she was introduced to Dartmouth Health Children's and given personalized care that her parents welcomed with open arms.
Within days of arriving in Lebanon, Remy's journey with CHaD began. Her care included a home visit from several doctors who delivered high-quality medical equipment to her home and sat down with her parents to answer any questions they had about her condition and treatment. Now, Remy is only visiting her doctors at CHaD every three months, as opposed to every few weeks. Remy's resilience, the dedication from her parents, and the medical professionals around her are a true testament as to what is accomplished at Dartmouth Health Children’s every day. Remy's mom, Cora, is also grateful for the team at CHaD. "I am proud to call Remy a CHaD Ambassador,” she said. "It is a way to champion her strength and to express my gratitude for the stellar care that brought her to where she is today."
Remy is a 2023 Kid HERO.

Mira
Mira has been a Children's Hospital at Dartmouth Hitchcock Medical Center (CHaD) patient for the last three years, seeing specialists in Cardiology, Otolaryngology and Endocrinology. Mira has Down syndrome and Tetralogy of Fallot (TOF), a rare condition caused by a combination of four heart defects. She has undergone multiple surgeries and procedures since she three nine months old and has regular appointments with her specialists. Her cardiologist, Meghan Zimmerman, MD, MPH, describes her as "happy, resilient and a joy to have as a patient." Mira is always excited to see her nurses and doctors at CHaD, greeting them with fist bumps, hugs and high fives. Mira was the 2022 Kid HERO.
Read more about Mira's story here.

Ivy
At only 25+1 weeks, Ivy came into the world a fighter. Immediately after birth, her and her family met with health care professionals that would soon become family, and she spent 116 days in the Intensive Care Nursey (ICN). During her stay at the ICN, they celebrated holidays, diaper changes, and every milestone that comes along with a baby born prematurely.
Eventually, Ivy went home on O2 and a heart monitor, with reassurance that the clinic was only a phone call away. After going home, Ivy quickly began Early Intervention and excelled at occupational therapy, physical therapy, speech, and developmental therapy. She will be graduating just shy of her 3rd birthday, which will mark yet another milestone in her life.
Ivy’s mom, Katie, reiterated that the hardest moment in her life also brought her a beautiful outcome.
“The ICN is hard,” she said. “It tests you, and makes you question things. It also teaches you more than you know, and that there is light on the other end. It proves that you can’t get a rainbow without a little, or a lot, of rain.”
Ivy is a 2023 Kid HERO.

Myles
Myles was introduced to CHaD when he was only four years old and experiencing a kidney issue. After receiving care from Pediatric Nephrology and the Pain Free Clinic, his family thought that would be the end of their CHaD journey. However, only four short years later when he was eight years old, Myles began to feel ill again.
His family met with ChaD’s Pediatric Gastroenterology team, where they diagnosed Myles with Ulcerative Colitis (UC), an autoimmune disease that causes bleeding of the large intestine. Despite this challenging diagnosis, the CHaD team was reassuring and treated Myles and his family with compassion.
“Dr. Al-Nimr patiently explained to us what was happening to Myles,” said his father, Chris Pelkey. “He made sure to speak directly to Myles, explaining that he is not alone, and that the CHaD Pediatric Gastroenterology unit has over 200 patients with UC.”
Myles wants to use that same reassurance that he received from Dr. Al-Nimr to reiterate to other CHaD patients that they, too, are not alone. He wants to help ensure that other kids know that when they come to CHaD they will feel cared for and special. Despite his difficult diagnosis and multiple inpatient stays, Myles’ still has a contagious smile and positive attitude.
Myles is a 2023 Kid HERO.

Joey
Small but might, Joey spent 4 long months at Dartmouth Health Children’s NICU after being born 13 weeks early. Joey was originally due in December 2022, but with pregnancy complications he was born in September 2022 weighing only 1lb 11.5 oz. During those four months at Dartmouth Health Children’s Joey was on countless ventilators, CPAP machines, feeding tubes and monitors.
On January 2, 2023 he was able to finally go home only to be readmitted a month later in need of emergency surgery. Joey continues to receive care at Dartmouth Health Children’s and enjoys tractors, fishing and spending time with his grandparents.
“The staff during Joey’s time at CHaD made us feel supported, they were a family, a “home away from home”. The staff wore their hearts on their sleeves and went out of their way - no request or question was too big or too small. They helped us get connected to resources when we needed them. It was one less stress on our shoulders so we could focus solely on Joey, and his emotional and physical needs. Dartmouth Health Children’s and CHaD was not only there to support Joey, but they were there for us as an entire family,” said Sammantha, Joey’s mom.
Joey is a 2023 Kid HERO.